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poppymoone (December 31, 1969 at 5:59 pm)
I have had M.E since i was 13.. I am now 35.. what you do every day is far more than anyone else will ever know. Mine stemmed from Encephalitis in my brain and I was in hopsital in a coma. But not everyone has obvious reasons. You are your strongest when you are weak.. this is when you become a true warrior.. it is the moving into each new day that makes you special.. not what you DO.. but exactly who you ARE.
BRONXPEPE (December 31, 1969 at 5:59 pm)
i had that but now i have insomnia it stresses me out to know i cant sleep so idk what to do
souleeze (December 31, 1969 at 5:59 pm)
I have felt like this every since the gulf war in 1990. Its a somber reality.
cardy71 (December 31, 1969 at 5:59 pm)
i've had CFS for 6 years now and I'm currently trying to finish year 12, this really just summed it all up perfectly, got a bit teary actually. I think i like this video so much because it explains so eloquently the symptoms i suffer but in a way i could never express to my friends myself, maybe through embarrassment or pride or worry that they believe im just lazy. thankyou very much for taking the time to post this, it made me feel a little better on a very bad day, and that means the world.
DrHMFIC (December 31, 1969 at 5:59 pm)
Chronic fatigue is now a proven disease, with research showing it includes impairment of the immune system. It drives you crazy but it's not "in your mind".Of all those dozen or so "cures" that people tell you about? Pick the top 3 or 4 and do those consistently, and take it easy on yourselves.Don't listen to people who haven't had it, who tell you to push thru it (really stupid advice), or to fix your attitutde. Eat well, rest when you can, de-stress...take care.
sokotosh (December 31, 1969 at 5:59 pm)
That's what I wanted to write down after I've seen the video. I'm too tired, my concentration is horrible and I'm too confused to tell it the way you did Ang. So thank you for this reaction and your encouragement!Lots of Love for all the sufferers of ME/CFS and their families.Big Hug, Sokotosh X
sayWHAT1891 (December 31, 1969 at 5:59 pm)
I'm now 17 (in my grade twelve year), and I first got CFS when I was 15. My friends constantly say "Woah, you're at school for once. I forgot what you looked like." I must say, it's not easy, I know exactly what you're going through and I wish all the best to you :)
littleang100 (December 31, 1969 at 5:59 pm)
As a sufferer of ME/CFS I broke down and cried at this video. It made me realise that there are people out there who understand and know what myself and others are going through!!! Hang on in there my fellow sufferers!!!!Love Ang (AKA, Sleepin Beauty) xxx
vincent4500 (December 31, 1969 at 5:59 pm)
had CFS since 23 until recently, terrible disease..thing is I had severe depression/anxiety before..the severe chronic insomnia and endocrine/immune system damage of that catapulted me into CFS/fibro..however it is an organic illness and what doctors aren't intelligent enough to understand is the principle of INteractive INdependence in such Syndrome disorders..depression is INteractive (contributes/worsens CFS) but curing the depression doesn't get rid of the real organic damage accrued
vincent4500 (December 31, 1969 at 5:59 pm)
I had it since 23 until about30..some symptoms etc do relapse occasionally..took me a superhuman effort and determination to generally get to level at now..got a full time job and busy social life, 99 % better..for me it was a mixture of T3 thyroxine deficiency (suspected in most fibro/CFS sufferers), suppressed immune system, allergies as a result (candida believe it or not!), interactive but Independent depression/anxiety..bloody complicated illness and those who promise 'magic bullets' lie |
