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BretagneShrew (December 31, 1969 at 5:59 pm)
no, they'd just deny that they died of this illness like they already do. a woman who lives about an hour away from me died of ME about a month ago. she had it post-ebv infection if I recall.
BretagneShrew (December 31, 1969 at 5:59 pm)
calling someone with ME a "cfs" patient is like calling a black person a nigger. its a demeaning term that has significantly impacted alot of our lives, compounding the problems we already suffer. As the term has resulted in widespread emotional suffering amoungst the patient group its a term that really should be ditched or deamed derogatory.
DrFrankyDolan (December 31, 1969 at 5:59 pm)
We would not need to change the name if it were to be more understood by the masses. I do agree though that the name is terrible. Fatigue is more of a result of what is happening in the body, not the culprit! That is why we must continue to honestly raise sincere awareness. I have begun a video series about my CFS experiences and I encourage others to do the same... I wish love and health to us all!Dr Franky Dolan
wendelaurel68 (December 31, 1969 at 5:59 pm)
If more people die of this illness, or complicationns of, then would the name change. ? Well spoken, My heart goes with you all who suffer.
Kirra2005 (December 31, 1969 at 5:59 pm)
GrnygnbadExcellent. Beautifully done. Thank you for using devices available to you to help people understand this confusing, frustrating illness.
OneGirlArmy (December 31, 1969 at 5:59 pm)
Personally, both names don't make much sense. The term M.E. stands for medical terms that distinguish something wrong with your brain or spine. CFS also trivializes the illness.CFIDS is a bit more acceptable of a name because it brings to the table the idea of immunodeficiency or Post Viral Fatigue.
SANDMANCASTHISSPELL (December 31, 1969 at 5:59 pm)
love your video
kylereinhard1 (December 31, 1969 at 5:59 pm)
My specialist is on the committee to change the name! For sure any title with "fatigue" in it trivializes the seriousness of the illness. Nothing bothers me more than when I'm discussing my illness with acquaintances and hear things like "I'm tired every morning when I wake up! Maybe I have it!"
grdnsmt (December 31, 1969 at 5:59 pm)
Thank you, it was beautifully done.
BretagneShrew (December 31, 1969 at 5:59 pm)
I like the music you've used, what is it called? and yes, CFS is a B.S. name used to mask the severity of disability in people suffering debilitating auto-immune diseases. |
